ABC NEWS: How Two Young Sisters Cope With a Rare Muscle Wasting Disease


We are SO honored our journey with SMA is being featured by ABC News! Hooray for spreading awareness about rare diseases, specifically Spinal Muscular Atrophy! Rare Disease Day is February 28th.

ABC News' Dr. Richard Besser and The National Organization for Rare Disorders, Inc. (NORD) are co-hosting a tweetchat today from 1-2pm, ET on the topic of Rare Diseases. Join in on the conversation by using the hashtag #abcdrbchat