Starting Spinraza

June 29th was a very special day. A day we have hoped and prayed for for a very long time. Brielle and Brooke had their first dose of Spinraza, the newly approved SMA treatment. The journey to get here has not been easy and we hope all SMA families who have not yet had this medicine will be able to gain access soon.
The girls were both so brave and they continue to amaze us with their "I can & I will" spirit. They are excited to see what improvements it will bring!
See more about SMA/Spinraza (Nusinersen) and how it works in this quick video: http://youtu.be/LrupDQsUkec