Continued Advancement of Pediatric Research

Eric and I are both thankful for the determination and hard work the non-profit organization, FightSMA, has put into creating the National Pediatric Research Network Act (NPRNA).

Yesterday we came together with FightSMA, leaders in pediatric research, top hospital doctors and advocates to meet with our district's U.S. House Energy Commerce Committee Chairman Fred Upton to discuss the path forward for the implementation of the NPRNA.

We couldn’t be more grateful for Chairman Upton's support for the National Pediatric Research Network Act. We look forward to working with him as we do everything in our power to facilitate critically important advancements in the field of rare diseases and disorders.

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Michigan House Resolution No. 403. "A Resolution To Declare August 2014 as Spinal Muscular Atrophy Awareness Month In The State Of Michigan!"

Thank you to our Representative Aric Nesbitt for offering Michigan House Resolution No. 403. "A Resolution To Declare August 2014 as Spinal Muscular Atrophy Awareness Month In The State Of Michigan!" It was adopted by the House of Representatives on August 27, 2014. Thank you to co-sponsors Brown, Crawford, Darany, Faris, Haines, Heise, Howrylak, Kelly, Kowall, Lamonte, LaVoy and Phelps.
#smaawareness

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