Chairman Upton is working on another bill - H.R. 2019 - The Gabriella Miller Kids Research Act of 2013. This bill would prioritize funding for the research of pediatric rare diseases and disorders such as cancer, autism, fragile X and Spinal Muscular Atrophy. It would eliminate political money and use the funds instead to expand the pediatric research through the National Institutes of Health’s common fund.
While talking on the House floor, Rep Upton mentioned how this bill would help his constituents —>Brooke and Brielle Kennedy and referred to them as “decorated little Generals” in the effort to boost research for rare diseases and they serve as an inspiration for every one of us!