#100Miles4SMA in the month of August - SMA Awareness Month!

Challenge yourself and your friends to complete 100 miles of movement in the month of August to raise awareness for Spinal Muscular Atrophy! 

ANY MOVING COUNTS!
Run, Walk, Bike, Swim, Wakeboard, Ski, Garden, Beach Stroll... whatever gets you moving for a purpose! 
10 minutes = 1 Mile. Post your miles on social media with the hashtag #100miles4sma


You will be able to buy a t-shirt to show your accomplishment and help raise SMA awareness! LAST DAY TO ORDER is AUGUST 21, 2017 so order soon! You will receive your order between August 30th and September 11th.  Order here: https://www.bonfire.com/100miles4sma/

It's that easy...SO GET MOVING TO MAKE A DIFFERENCE!!! 
"I CAN AND I WILL"

Driven To Give - Gloves Program -by The Dale Jr. Foundation

NASCAR Driver Dale Earnhardt Jr. is wearing cream colored skeleton driving gloves this month at all races in honor of Brooke, Brielle and the many other people who live with ‪#‎SpinalMuscularAtrophy‬
Brooke and Brielle were able to meet him and his fiancée Amy, to personally thank them. B&B had so much fun at Michigan International Speedway and at one point, Brielle said her eyes were tearing up because she was so happy to have this experience. If you have ever been to a racetrack in person you will know what she means, there is so much to see and do! 
Dale Jr. let Brooke and Brielle try on the gloves on pit road by his race car just before the race started and they thought that was really COOL.
Dale Earnhardt, Jr.'s race worn gloves will be put on eBay at the end of the month with proceeds benefiting Fight SMA.
http://stores.ebay.com/The-Dale-Jr-Foundation

Michigan House Resolution No. 403. "A Resolution To Declare August 2014 as Spinal Muscular Atrophy Awareness Month In The State Of Michigan!"

Thank you to our Representative Aric Nesbitt for offering Michigan House Resolution No. 403. "A Resolution To Declare August 2014 as Spinal Muscular Atrophy Awareness Month In The State Of Michigan!" It was adopted by the House of Representatives on August 27, 2014. Thank you to co-sponsors Brown, Crawford, Darany, Faris, Haines, Heise, Howrylak, Kelly, Kowall, Lamonte, LaVoy and Phelps.
#smaawareness

Transient

August is Declared Spinal Muscular Atrophy Awareness Month in the state of Michigan!

Michigan is going to be joining the other states - declaring August as “Spinal Muscular Atrophy Awareness Month!”  This marks our fourth year of being involved in getting recognition for all the families dealing with SMA (past and present).  With the help of our State Senator Tonya Schuitmaker we were able to get the Proclamation again this year!  Our State Representative Aric Nesbitt will introduce the resolution on the House floor for us too!  The State Senate will pass the resolution in the last week of August and the House will pass the resolution in the first week of September.  We are so excited!!

We will be sure to post pictures once we get the resolutions!

SMA Awareness Month.jpg

Michigan is going to be joining the other states - declaring August as “Spinal Muscular Atrophy Awareness Month!”  This marks our fourth year of being involved in getting recognition for all the families dealing with SMA (past and present).  With the help of our State Senator Tonya Schuitmaker we were able to get the Proclamation again this year!  Our State Representative Aric Nesbitt will introduce the resolution on the House floor for us too!  The State Senate will pass the resolution in the last week of August and the House will pass the resolution in the first week of September.  We are so excited!!We will be sure to post pictures once we get the resolutions!

Update

on 2013-09-06 17:47 by Sarah

Senate Resolution 0079 (2013)

A resolution recognizing August 2013 as Spinal Muscular Atrophy Awareness Month in the state of Michigan. 

http://www.legislature.mi.gov/(S(0hvbis55ho5skivgjqmaodz0))/mileg.aspx?page=getobject&objectname=2013-SR-0079&query=on