Brielle turned 5 and Brooke 4 years old this year!
2012 seems to be a year of firsts for us!
Here are the firsts for our family:
First sleep studyFrist time bowlingBrielle won a photo contest and was on the Cover of Kalamazoo Parent MagazineFirst time fishingStarted aquatic therapyBrielle started KindergartenBrooke had her first haircutBrielle donated her hair to Locks of LoveFirst sleepover with friend, Evie H.Meritor Fundraiser for FSMA – Raised $2875 for FSMABrielle got her ears piercedOur family went on our first hot air balloon rideB&B fed the dolphins at Sea WorldEric went to Africa for an Army mission.August is declared SMA Awareness Month in the state of MI by Gov. SnyderEric’s dad passed awayBrooke had 3 stitches in her chin.Eric’s military promotionWe visited our local fire departmentOur dog Mollie passed awayWe met the World’s tallest dog – ZeusBrooke was an Ipad grant recipient from the Gwendolyn Strong FoundationOur family was in a Commercial for Representative Fred Upton!and the best for last… Our family was picked to be the Grand Marshalls of the Disney World Dream come true parade!! On the same day, Eric was chosen to be the Veteran of the Day at Magic Kingdom Park.
The firsts for the The Friends of Brooke and Brielle Organization:
- The “flamingo flocking” fundraiser was held during the month of August to raise awareness for Spinal Muscular Atrophy. It was a great success and we can’t wait to try it again next year!
For the first time our friends have stepped in to help by selling their own goods to provide their profits to the Friends of Brooke and Brielle Organization!
- The Yummy Cupcake fundraiser held by Marianne
- I can and I will Inspirational Print created by Angi P.
- B&B SMA Awareness Bracelet created by Alex D.
- The sweetest little 5 year old, RaElla dedicated her birthday to raise money for her friends Brooke and Brielle.
- The Gwendolyn Strong Foundation created a beautiful “I Can & I Will” tank inspired by Brooke and Brielle.
The firsts for Spinal Muscular Atrophy (SMA):
- We have also been involved with legislation called, “National Pediatric Research Network Act”
- Our family visited Senator Hagan’s office in North Carolina with our Aunt Christen to enlist support for the bill.
- Our family has visited our Representative, Congressman Fred Upton, many times to enlist his support for the bill.
- Dec 4 was a historic day for Spinal Muscular Atrophy. The Recombinant DNA Advisory Committee (RAC) panel approved the gene therapy program so that it could move forward toward human clinical trials. This is important step #1 in a 3 step process.