#100Miles4SMA in the month of August - SMA Awareness Month!

Challenge yourself and your friends to complete 100 miles of movement in the month of August to raise awareness for Spinal Muscular Atrophy! 

Run, Walk, Bike, Swim, Wakeboard, Ski, Garden, Beach Stroll... whatever gets you moving for a purpose! 
10 minutes = 1 Mile. Post your miles on social media with the hashtag #100miles4sma

You will be able to buy a t-shirt to show your accomplishment and help raise SMA awareness! LAST DAY TO ORDER is AUGUST 21, 2017 so order soon! You will receive your order between August 30th and September 11th.  Order here: https://www.bonfire.com/100miles4sma/


#100Miles4SMA Hosted by Sole2Soul

August is SMA awareness month and we are challenging ourselves and YOU to help us spread awareness and complete 100 Miles for SMA.  Challenge your friends, groups, teams and families to join us on the Facebook event page and post your daily or weekly progress and let us know when you hit 100 miles!  This is a virtual event and can be completed anywhere!  We will be there to cheer you on!

Everyone's A Bride Pub Crawl For SMA Awareness

Have you ever wondered what to do with the old wedding dress in the back of the closet? The "Everyone is a Bride" Pub Crawl is a great way to reuse that old wedding, or bridesmaid dress from your closet.  Lets meet up at Bronson Park and raise some awareness for Spinal Muscular Atrophy! 

Driven To Give - Gloves Program -by The Dale Jr. Foundation

NASCAR Driver Dale Earnhardt Jr. is wearing cream colored skeleton driving gloves this month at all races in honor of Brooke, Brielle and the many other people who live with ‪#‎SpinalMuscularAtrophy‬
Brooke and Brielle were able to meet him and his fiancée Amy, to personally thank them. B&B had so much fun at Michigan International Speedway and at one point, Brielle said her eyes were tearing up because she was so happy to have this experience. If you have ever been to a racetrack in person you will know what she means, there is so much to see and do! 
Dale Jr. let Brooke and Brielle try on the gloves on pit road by his race car just before the race started and they thought that was really COOL.
Dale Earnhardt, Jr.'s race worn gloves will be put on eBay at the end of the month with proceeds benefiting Fight SMA.

Sole2Soul Presents #100Miles4SMA!

RunS2S is hosting a challenge of moving 100 Miles in August for two very special girls, Brooke and Brielle, and to bring awareness to Spinal Muscular Atrophy!  

JOIN US HERE!  on.fb.me/1JZeTGC 

Lets bring awareness to SMA by moving 100 awesome miles in August, you never know whose life you'll change!


Run, Walk, Motocross, bike, skateboard, Workout Class, Yoga, Pilates..ANY movement counts towards your miles!
10Min = 1Mile
Log your miles in the Facebook event, receive amazing support, make new friends, encourage others to get their miles in! 

We are making a difference!  Learn more here.

Art Gala by Valerie Ott Photography

Valerie Ott Photography held a color gala last week and 100% of the ticket sales went toward CURE SMA!  Brooke & Brielle had so much fun looking at all the beautiful photographs and meeting all of the models.  
Thank you so much, Riley, for nominating CureSMA as the cause worth doing a fundraiser for and huge thank you to Valerie for all of the work you put into putting this event together and helping us spread the word about Spinal Muscular Atrophy!

CharityWERQ Fundraiser in honor of Brooke and Brielle

Having fun at Mattawan's FitZone WERQ class!  Picture taken by Paul Garrod - The Courier Leader

Having fun at Mattawan's FitZone WERQ class!  Picture taken by Paul Garrod - The Courier Leader

CharityWERQ FitZone Mattawan Flyer for CureSMA.

Brooke and Brielle with WERQ instructors Vicki and Laura for a practice dance.

Brooke and Brielle with WERQ instructors Vicki and Laura for a practice dance.

Denise and Sarah at Channel 3 News promoting the CharityWERQ event and raising SMA awareness!

Denise and Sarah at Channel 3 News promoting the CharityWERQ event and raising SMA awareness!


Who: FitZone of Mattawan

Where: Antwerp Township Hall

When: Sunday, Octopber 19th 2014 from 1-3pm.  

Cost: $15 per person and $25 for a family.  

(There will also be entry for prize drawings with extra donations of $5 or more at the event.)

All proceeds will be donated to CureSMA in honor of Brooke and Brielle.  

We hope to see you there!

Register or Donate

WERQ is the fiercely fun dance fitness class based on pop, rock, and hip hop music taught by certified fitness professionals. WERQ's blend of achievable dance and non-stop cardio set to currently charting music make this one of the hottest fitness formats around! CharityWERQ events are hosted by WERQ Instructors across the nation with the goal of raising money for worthy causes such as CureSMA.

Press for the event:

Thank you to all of the local businesses who have donated prizes for the drawing during the event!

Team Brooke and Brielle T-Shirts Now Available!

Many of you have asked about T-shirts in the past and now we have a “Team Brooke and Brielle” shirt made up!  We will be wearing them for the first time May 3rd for the Families of SMA Michigan Chapter Run, Walk and Roll event.

We are asking $20 for each shirt.  Please be sure to include the size(s) you would like to order in the “add special instructions to seller” section.  Men’s sizing only.  Sizes Small - 2XL. 

Shirts are Vapor brand, made with high-quality, 100% spun polyester to deliver the look and feel of cotton with the benefits of polyester, with superior sweat wicking.

Order here:

Thank you for your support!!

Walk N Roll T-Shirt Front.jpg
Walk N Roll T-Shirt back.jpg

front of shirtback of shirt

Team BB Shirts1.jpg