Brooke has Respiratory Syncytial Virus Infection (RSV) :(

Respiratory syncytial (sin-SISH-uhl) virus, or RSV, is a respiratory virus that infects the lungs and breathing passages. Most otherwise healthy people recover from RSV infection in 1 to 2 weeks. However, infection can be severe in some people, such as certain infants, young children, and older adults. In fact, RSV is the most common cause of bronchiolitis (inflammation of the small airways in the lung) and pneumonia in children under 1 year of age in the United States. In addition, RSV is more often being recognized as an important cause of respiratory illness in older adults. - Courtesy of

Friday, April 15th, Brooke was diagnosed with RSV.  She’s been sick for about a week now and it all started with an ear infection.  We started her on an antibiotic right away and we’ve been waiting for this to pass but instead of getting better, she’s been getting worse.  She’s lost her voice and has had a non-stop runny nose and ‘wet’ cough.  Our last scheduled clinical trial visit was supposed to be this week Wed-Fri. so they suggested we get a virus panel to see what kind of virus we are dealing with and the results came back with RSV.  Brooke also had a chest X-ray but that came back clear, thank goodness!  Since she has RSV, the doctor said she should not be doing any traveling for at least 6 weeks!  So we will just have to reschedule for another time.  I was kind of looking forward to going out there and putting all this behind us but things happen and we’re doing our best to get Brookie better.

She has been home and getting lots of rest, fluids and nutriton through her feeding tube.  She’s been entertained by Disney movies and her favorite is Cinderella!  We’ve been using the cough assist machine to help her clear secretions from the lungs.  When she breathes in, the machine gives her air to help expand the lungs.  When she blows out, the machine creates a sucking force that pulls air out of the lungs.  This rapid change in pressure during breathing helps make the cough stronger and better.  It is something we should be using daily but is essential in times like this when she needs the help with her cough and preventing pneumonia.

Brooke coughing in the cough assist mask

Please say a little prayer for Brooke that she gets over this virus quickly!  Thanks for all of your support!