"Everyone's A Bride" Fundraiser for CureSMA

Have you ever wondered what to do with the old wedding dress in the back of the closet? The "Everyone is a Bride" Pub Crawl is a great way to reuse that old wedding, or bridesmaid dress from your closet. Let's make this event an "EPIC" one! Invite anyone and everyone you can possibly think of!

The Pub Crawl will begin Saturday July 23rd at 6:00 p.m. in Bronson Park

Participating Bars for the Pub Crawl:

  • Ruggers Up & Under
  • Gonzo's Big Dog Brewing
  • Harvey's on the Mall
  • The Green Top
  • Boatyard Brewing Company
  • Wild Bull
  • Old Burdicks Bar & Grill
  • Tibbs Brewing Company
  • The Wine Loft
  • Old Peninsula
  • The Tap House
  • Shakespeares
  • Bell's
  • Old Dog Tavern
  • Beer Exchange

Join the Facebook event here:  https://www.facebook.com/events/469355929924115/

Use the hashtag #BridePubCrawl4SMA and follow along with us! 

All proceeds will benefit CureSMA. With 18 drug programs in the pipeline and seven now in clinical trials, we are closer to an approved treatment than we ever have been. We’re reaching more families with our support programs, and improving their access to care. But with this great progress comes even greater needs.

Together we CAN cure SMA.

Driven To Give - Gloves Program - by the Dale Jr. Foundation

NASCAR Driver Dale Earnhardt Jr. is wearing cream colored skeleton driving gloves this month at all races in honor of Brooke, Brielle and the many other people who live with ‪#‎SpinalMuscularAtrophy‬

#100 Miles for SMA Awareness

Lets bring awareness to SMA by moving 100 awesome miles in August, you never know whose life you'll change!

PLEASE SHARE THIS SO WE CAN GET AS MANY INVOLVED AS POSSIBLE!

HOW IT WORKS:
Run, Walk, Motocross, bike, skateboard, Workout Class, Yoga, Pilates..ANY movement counts towards your miles!
10Min = 1Mile
Log your miles in the Facebook event, receive amazing support, make new friends, encourage others to get their miles in! 

We are making a difference!  Learn more here.

Art Gala by Valerie Ott Photography

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Art Gala!  All proceeds will go to CURESMA

https://youtu.be/TrhZUmaxqzA

This event will be at the Girl Scouts building in Kalamazoo.  May 21st from 7:00-9:00pm

For tickets please text 269.352.3810.  $10 per ticket.

Mark your calendar for May 21. Drop in at the Girl Scouts Building in Kalamazoo!

@ryrycompags @courtney.copeland @kendall1300 @mikalajd @sarahmajor12 @dont_treadonme @kaileypow

FITZONE OF MATTAWAN HOSTS CHARITYWERQ DANCE-TO-DONATE FUNDRAISER! Raises $800 for CURESMA!

Who: FitZone of Mattawan

Where: Antwerp Township Hall

When: Sunday, Octopber 19th 2014 from 1-3pm.  

Cost: $15 per person and $25 for a family.

(There will also be entry for prize drawings with extra donations of $5 or more at the event.)

All proceeds will be donated to CureSMA in honor of Brooke and Brielle.  

We hope to see you there!

 

Pampered Chef Fundraiser

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Celebrate summer - Pampered Chef Style!

Check out great items for your kitchen and up to 20% of all product sales will go directly for Brooke and Brielle. 

Hosted by: Kendra Park

When: Orders due by August 3rd, 2013

Click here to place an order: http://www.pamperedchef.biz/kelsoskitchen?page=products-main

For all questions regarding Pampered Chef, please contact Independent Director & Trainer:  Laura Kelso  

(616) 724-7200 / lkelsopc@comcast.net

Update

on 2013-08-06 00:25 by Sarah

The Pampered Chef fundraiser raised $365!!  Thank you to everyone who placed an order and helped raise awareness.  That is one heck of a fundraiser!!  

Fundraiser: Instant Tax Service will donate up to $1,000!

Fundraiser time! Help us get $1000 donated toward Brooke and Brielle’s medical fund. It’s easy to do an you will be entered into a drawing for 1 of 2 $50 iTunes gift cards. 

—>Go to Instant Tax Service Headquarters and like their Facebook page.They are pledging $5/new page like and $5/share for each share of their post! 

Each share enters you into a drawing for 1 of 2 $50 iTunes GC. Drawing ends at 4pm ET on Wed 3/27/13. Share up to 5x/day. 

Thank you!!

Update

on 2013-06-01 04:55 by Sarah

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We did it! Thank you so much for liking & sharing and helping us spread SMA awareness! Thank you Anita B. for this opportunity! The winners of the $50 iTunes gift cards are: Steve Perry and Mary Kay Pederson! Congratulations!!

From Instant Tax Service

“We are so, so happy to announce that on behalf of all of our Facebook and Twitter friends, Instant Tax Service is donating $1000 to Brooke and Brielle’s medical fund. Thanks to all who took part in sharing their story. Let’s all hope and pray a cure is found soon…..Gift card winners are going to be announced next!”

RaElla, 5, skips birthday presents, asks for donations to help Brooke and Brielle.

Usually, children have a long list of toys and presents they want for their birthday.

Not sweet RaElla. 

She decided she wanted to help her friends, Brooke and Brielle, instead of receiving gifts for her 5th birthday.

RaElla and Brielle were born just a few days apart and have only met a few times face to face (because they live in different states).  But those play dates have made a lasting impression on RaElla.  So much so that she asked her family and friends to donate money to the “Friends of Brooke and Brielle Organization” instead of buying presents for her.

We feel incredibly honored by RaElla’s selflessness and her generosity in giving up her birthday presents to help Brooke and Brielle. We were simply blown away by her generosity. This came as a huge surprise to us!  We only learned about it after her birthday took place and we received an envelope in the mail filled with checks for the “Friends of Brooke and Brielle!”  RaElla’s mom wrote, “We’ll keep praying and doing our part for a cure!”  I had tears instantly run down my face, it was such a kind gesture.  Acts of kindness like this make us feel as if we are not alone in this battle against SMA.  I am constantly reminded that we have so many amazing friends out there willing to help us carry the constant burden that we are faced with from this awful degenerative disease.

We hope that through RaElla’s 5th birthday, her friends and family have learned more about the leading genetic killer of infants and young children, Spinal Muscular Atrophy (SMA).

RaElla’s beautiful act of kindness reminds us what an important impact each person can have on another and she is so inspiring!

Happy 5th birthday to RaElla and thank you for your big-hearted generosity!!! <3

Flamingo Flocking Fundraiser - Raising SMA Awareness

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Welcome Flockers!  

This is a fundraiser by The Friends of Brooke and Brielle Organization to raise awareness for Spinal Muscular Atrophy during the month of August.  Flamingo flockings will be held in and around the city of Charlotte, NC.  If you don’t live there, check out our virtual flamingo flocking option- it can take place anywhere! 

Here’s how it works:

A friend of yours makes a donation to the “Friends of Brooke and Brielle Organization” to place these pink darlings in your yard.

This flocking is done in good spirits and is not meant to be mean.

The flamingos will roost on your lawn for up to 72 hours then they will mysteriously migrate to another friend’s (victim’s) lawn.

If you would like to specify the next victim, all we ask is a small donation to our organization.  Of course, the removal of these flamingos will be done at no charge, so please don’t hurt our pink feathered friends.

Again, thank you for your sense of humor and your support.  Please pass on to your friends the excitement of being “FLOCKED!”

~Friends of Brooke and Brielle 

Example of a virtual flocking

Get Started Here!

Cupcake Fundraiser for SMA Awareness Month!

Hey Kalamazoo, MI area friends, check this out!  Mmmm… cupcakes!

From Marianne:

August is Spinal Muscular Atrophy Awareness month and to celebrate our dear friends Brooke and Brielle, Izzy and I are holding another cupcake fundraiser… 

Cupcakes are available by the dozen for $25. Flavors available are chocolate cappuccino, strawberry with strawberry buttercream, vanilla and black forrest. We will make deliveries each weekend starting August 11th through the end of august. Special accommodations can be made with advanced notice.

Meritor Fundraiser Raises $2,875 for FSMA!

A dear friend I went to college with organized a Jeans Day, BBQ lunch and Ice Cream Social Fundraiser at her workplace, Meritor.

We made it there for the lunch festivities and even got to help out at the ice cream social.  Brielle decided she would like to help by shaking the rainbow sprinkles on the sundaes.  She did such a great job and really stuck with the task until the event was over.  She got real good drumming up business by yelling, “Ice cream, Ice cream… come and get some ice cream!”  Brooke helped shake some sprinkles too but she was more interested in rolling around the parking lot looking for puddles to roll through with her wheelchair.  :)  

We met so many wonderful people and I think having the girls there really helped bring awareness about SMA to many who had never heard of it before.  Thank you to everyone who supported and helped out with this fundraiser!

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The Madagascar Hack! Rugger's Up and Under Golf Outing

The “Madagascar Hack” is back!

Proceeds benefit the SMA Gene Therapy program from Nationwide Children’s Hospital/Ohio State University in honor of Brooke and Brielle.

The golf outing will be held Saturday, June 9th at The Prairies Golf Club in Kalamazoo, MI.

We will have prizes, raffles and more!
Sign up ASAP, there are limited spaces available.

Costs to play: $160 per foursome, includes dinner following at The Up and Under.

Any questions please contact The UP and Under @ (269) 373-1412

Premier Designs Jewelry Party Fundraiser Raises $502 for Families of SMA!

  • We’re closely approaching Mother’s Day and what better way to celebrate than having a fun night out with the girls and getting some beautiful jewelry for yourself or someone you love!
  • Come out Wednesday, April 18th and browse the new 2012 spring/summer jewelry line from Premier Designs! A percentage of all sales will be donated for Spinal Muscular Atrophy research.
  • Can’t make it? Pre-order something beautiful for your spring wardrobe!
  • What: Premiere Designs High Fashion Jewelry Party http://www.premierdesigns.com/
  • When: Wednesday April 18, 2012 at 6:00 pm
  • Where: Main Street Pub/Restaurant, Mattawan, MI 49071
  • or call in your order by 4/19/12.
  • How to order:
  • If you need a catalog please contact:
  • Sherry Crossley
  • Phone: 269-629-4588
  • E:mail: Sherrycrossley@sbcglobal.net
  • 1. Fill in all information in the Order Form.
  • 2. Pay your total (a $4.00 Shipping and Handling Fee is added to the subtotal BEFORE adding the 6% sales tax) with cash or check written to Sherry Crossley. If you wish to pay with a CREDIT CARD, write your number in the appropriate box on the order form and seal it in an envelope.
  • 3. This show closes on 4/20/12 Orders take approximately 5 days to ship.
  • Thank you for your support!
  • 2nd Annual Rusty Rudder Golf Outing in North Carolina for FSMA in honor of Brooke and Brielle!

    We were so excited to attend the 2nd Annual Rusty Rudder Golf Outing in Huntersville, NC at Skybrook Golf Course Sept 12, 2011.  It was a beautiful day and over 140 golfers showed up to support SMA research.

    We stayed for a week to visit with “Aunt Ten” and kept busy every single day!  We would like to thank the Rusty Rudder for choosing Brooke and Brielle for their 2nd Annual Golf Outing and everyone who participated!  We had such a great time and enjoyed seeing all of our friends and meeting new ones! 

    See ya’ll next year!

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    SMA Art Auction (Created by Brielle and Brooke) for SMA Awareness Month Raises $1,750 For Families Of SMA!

    This is an ONLINE auction on our Facebook Page.  If you don’t have an account please create one and “like” the Friends of Brielle and Brooke Fan Page and place a comment under the painting that you like with your bid. 

    Easy as that!!  :)  Proceeds go to the Families of SMA And your donation is tax deductible.

    Time

    NOW

    -

    August 22 at 9:00pm

    Location

    ONLINE

    Created By

    Friends of Brielle and Brooke

    More Info

    August is SMA Awareness Month and we are celebrating by having an art auction! All paintings were created and named by Brielle and Brooke!

    https://www.facebook.com/f

    riendsofbrielleandbrooke#!

    /media/set/?set=a.10150288

    158398744.353910.345911263

    743&type=1

    Place a comment with your bid under the picture you like and the winning bid by 9:00pm on Monday, August 22nd WINS!

    All proceeds will go to the Families of SMA for research to find a CURE for SMA!

    Please invite your friends to this event and help us have a successful Art Auction for SMA!

    Thank you!!

    There are 8 paintings total. 

    Please visit the SMA Art Auction Album on Facebook to place your bid.

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    Applebee's Fundraiser For SMA Awareness Day Raises $273.44!

    Enjoy a meal that is filling - and fulfilling!!

    Applebee’s Dining to Donate program will donate 15% of your bill to Families of SMA in honor of Brooke and Brielle on August 22nd at ALL Kalamazoo locations.

    Present this flyer to your server on MONDAY AUGUST 22nd, 2011 at any Applebee’s location in Kalamazoo, MI. You will only need one flyer per table.

    The Rusty Rudder Charity Golf Outing Raises $4,000 for Families of SMA!!

    Time
    Monday, September 12 · 11:00am - 2:00pm

    Location
    Skybrook Golf Club
    14720 Northgreen Drive
    Huntersville, NC

    Created By

    More Info
    The Second Annual Rusty Rudder Golf Outing. Proceeds benefit The Families of SMA (FSMA) in honor of Brooke and Brielle.

    Families of Spinal Muscular Atrophy is dedicated to creating a treatment and cure by:

    “Our vision is a world where Spinal Muscular Atrophy is treatable and curable.”

    The golf outing will be held Monday, September 12th at Skybrook Golf Club in Huntersville, NC.
    We will have prizes for lowest score, longest drive, closest to the hole, raffles and more! We are looking for donations, hole sponsors, golfers, and advertising to help raise as much money as possible. Our goal this year is to have a full field of 144 golfers. If any
    one has any ideas or suggestions, please let us know.

    Costs to play: in July, $400 per foursome
    in August, $500 per foursome
    *add $200 to sponsor a hole!


    Any questions please contact Eric or Ted @ 704-895-9195

    The Madagascar Hack! Rugger's Up and Under Golf Outing Raises $299.00 for Families of SMA

    Time
    Saturday, June 25 · 11:00am - 2:00pm

    Location
    The Prairies Golf Club
    5303 West Main
    Kalamazoo, MI 49009

    Created By

    More Info
    Rugger’s Up and Under Golf Outing “The Madagascar Hack” is back!

    Registration is at 11 am with a shotgun start at 12 Noon.
    Four person teams and the entry is $60.00 per person. Steak dinner to follow at Up and Under on the Tiki patio. Raffle tickets will be sold at the course and the drawing will immediately follow dinner. Proceeds from the outing will go to benefit Families of Spinal Muscular Atrophy (FSMA) in honor of Brielle and Brooke!

    Register early and good luck!

    Troy, OH Strawberry Festival

    The amazing Beb-e-ssential ladies, Penny and Melissa, have graciously offered to host an SMA awareness booth at the annual Troy Strawberry Festival in Ohio!  All proceeds will go to the Gwendolyn Strong Foundation for SMA research! 

    Here is a quote from Victoria Strong last year about the first duck race, “Penny and Melissa heard the festival organizers were holding a duck race raffle — The Great Strawberry Duck Race. Well, Penny and Melissa immediately marched over to buy their ducks and they generously did so in the name of the Gwendolyn Strong Foundation! These cute little rubber duckies never meant more. The grand prize was $1,000!!! — and while the 2nd through 6th place winnings were really neat prizes, pizza every month isn’t going to help cure SMA. This was a long shot — a HUGE long shot. There were hundreds of duckies entered into the contest. But, none as cute as “Gwennie!” After a huge rain storm made the river too full, Penny and Melissa weren’t exactly sure how the “race” would go. It turned out, the ducks were all herded into a pool, labeled only with a random number, and then the Strawberry Festival Queen and Princesses lined up to each select a winner — with the Queen randomly picking the grand prize lucky duck. And guess what??? Gwennie was selected!!! Our duck, out of hundreds, is the winning duck!!! Can you believe it??? It gives me goosebumps to think of the odds and to know none of it would have happened without two very generous, thoughtful, and fabulous ladies!!! Thank you so, so much Penny and Melissa. You are simply incredible.”

    This year, Penny and Melissa are holding another booth to raise awareness for SMA this weekend.  It is sure to bring attention with all kinds of SMA awareness paraphernalia and photos of 50 children impacted by SMA and guess what?  Brooke and Brielle are featured!  Penny and Melissa are opening up the duck race to all of us by making a donation on their website, and all you have to do is just make sure to put your name, address and phone number in the comments section when you check out and they will fill out the tickets for you!  Each duck is $5 or you can purchase the “quack pack” that gives you 5 for $20. 

    So what are you waiting for, go quackie and purchase your ducks!