Monday, September 12 · 11:00am - 2:00pm
Skybrook Golf Club
14720 Northgreen Drive
The Second Annual Rusty Rudder Golf Outing. Proceeds benefit The Families of SMA (FSMA) in honor of Brooke and Brielle.
Families of Spinal Muscular Atrophy is dedicated to creating a treatment and cure by:
The golf outing will be held Monday, September 12th at Skybrook Golf Club in Huntersville, NC.
We will have prizes for lowest score, longest drive, closest to the hole, raffles and more! We are looking for donations, hole sponsors, golfers, and advertising to help raise as much money as possible. Our goal this year is to have a full field of 144 golfers. If any
one has any ideas or suggestions, please let us know.
Costs to play: in July, $400 per foursome
in August, $500 per foursome
*add $200 to sponsor a hole!
Any questions please contact Eric or Ted @ 704-895-9195
Skybrook Golf Course in Huntersville, North Carolina, hosted The Rusty Rudder’s 1st Charity golf tournament for Families of SMA. It was a beautiful day that hosted over 140 golfers.
Brielle and Brooke Kennedy, who suffer from Spinal Muscular Atrophy (SMA) Type II, stole the hearts of many in the Charlotte, NC region. Both Eric Paul and Brian Johnston, of The Rusty Rudder Management Staff, knew they had to do something to help. They both met the girls earlier in the year at a casino night fundraiser for the girls, hosted at Hendrick Motorsports, and they wanted to do everything they could to help find a cure to this devastating disease. Eric and Brian rallied the community and vowed to raise monies and awareness for SMA. A golf tournament seemed the perfect fit and away they went to the drawing board, and on September 13th, they held their first ever charity golf tournament.
“We knew we had a lot to do in a short period of time, but we’d do anything we could to help these two sweet little angels”, said Eric Paul, Owner of The Rusty Rudder. The ladies and gentlemen that participated teed off to a shotgun start, captain’s choice format and finished up around 4:00pm. After golf a reception was held back at The Rusty Rudder with complimentary food, cocktails, friends and family. “We couldn’t have asked for a better turnout the first time and we can’t wait to start planning again for next year”, said Brian Johnston, General Manager of The Rusty Rudder. Kristin Balzer’s team won the tournament and bragging rights for next year. “The Rusty Rudder is a great place to work and my father and his team were thrilled to participate and can’t wait to defend the winning title until next year”, said Kristin Balzer, bartender at The Rusty Rudder. If you are ever in the Cornelius area of Lake Norman, NC, home to many superstars of NASCAR, please be sure to stop in at The Rusty Rudder and say hi to Eric and Brian! Also, keep an eye on EBAY auctions under The Rusty Rudder for opportunities to bid on Used Raced NASCAR sheetmetal from Kasey Kahne, Richard Petty, AJ Allmendinger, Carl Edwards and many more.
Altogether, The Rusty Rudder Golf Tournament raised $4,000 for Families of SMA!
- Eric Paul of The Rusty Rudder & Christen Tinsley of HendrickMotorsports and Friends of Brielle and Brooke Kennedy
Brielle and Brooke, both have Spinal Muscular Atrophy, type II. SMA is a devastating disease and something I was not familiar with before Brielle’s diagnosis. Since that diagnosis, our lives have changed so much. So many hopes and dreams for our kids went out the window. We still have so much hope for research to find a treatment/cure for this cruel disease and we do our best to have a positive outlook on life and do as many fulfilling experiences for our girls as we can. Our friends and family have been with us every step of the way and we couldn’t have made it through those really tough times without them.
…and even our friends of friends want to help. The owners of the restaurant “Rusty Rudder” on Lake Norman in North Carolina are friends of my sister (aka Aunt Christen) and they held a golf tournament last Monday and want to give all the proceeds to Families of SMA in honor of Brielle and Brooke. They held a golf tournament at Skybrook golf course, then complimentary food and live music and a silent auction at the Rusty Rudder after. The music was awesome and they even let Brielle play the drums along with the guys playing the live music. It was a perfect night and a beautiful sunset. A night we will never forget and we can’t thank them enough for choosing SMA for the proceeds!
Skybrook Golf Course, North Carolina
What is SMA?
SMA kills more young children than any other inherited disease, is the most common cause of genetic infant mortality, is the #1 genetic killer of young children.
SMA is degenerative, causing the weakness and wasting of voluntary muscles — eventually impacting crawling, walking, standing, sitting up, coughing, breathing, swallowing, speaking…anything requiring muscle strength.
SMA is estimated to occur in 1 out of every 6,000 live births. Incidence rates are comparable to the more well known ALS/Lou Gehrig’s disease and Cystic Fibrosis.
1 in every 40 people unknowingly carries the SMA causing gene or nearly 8 Million potential parents in the U.S. alone — making it “common.” Both people must be carriers for the disease to be passed on — making it “rare.” There are simple blood or saliva tests available to learn if you are a carrier before you get pregnant. The American College of Medical Genetics recommends ALL couples be tested for SMA.
SMA is terminal. There is currently no treatment or cure… BUT there is much research work being done around the world and it holds enormous potential. In fact, the National Institutes of Health selected SMA as the disease closest to treatment.