The Madagascar Hack! Rugger's Up and Under Golf Outing

The “Madagascar Hack” is back!

Proceeds benefit the SMA Gene Therapy program from Nationwide Children’s Hospital/Ohio State University in honor of Brooke and Brielle.

The golf outing will be held Saturday, June 9th at The Prairies Golf Club in Kalamazoo, MI.

We will have prizes, raffles and more!
Sign up ASAP, there are limited spaces available.

Costs to play: $160 per foursome, includes dinner following at The Up and Under.

Any questions please contact The UP and Under @ (269) 373-1412

The Rusty Rudder Charity Golf Outing Raises $4,000 for Families of SMA!!

Time
Monday, September 12 · 11:00am - 2:00pm

Location
Skybrook Golf Club
14720 Northgreen Drive
Huntersville, NC

Created By

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The Second Annual Rusty Rudder Golf Outing. Proceeds benefit The Families of SMA (FSMA) in honor of Brooke and Brielle.

Families of Spinal Muscular Atrophy is dedicated to creating a treatment and cure by:

“Our vision is a world where Spinal Muscular Atrophy is treatable and curable.”

The golf outing will be held Monday, September 12th at Skybrook Golf Club in Huntersville, NC.
We will have prizes for lowest score, longest drive, closest to the hole, raffles and more! We are looking for donations, hole sponsors, golfers, and advertising to help raise as much money as possible. Our goal this year is to have a full field of 144 golfers. If any
one has any ideas or suggestions, please let us know.

Costs to play: in July, $400 per foursome
in August, $500 per foursome
*add $200 to sponsor a hole!


Any questions please contact Eric or Ted @ 704-895-9195

The Madagascar Hack! Rugger's Up and Under Golf Outing Raises $299.00 for Families of SMA

Time
Saturday, June 25 · 11:00am - 2:00pm

Location
The Prairies Golf Club
5303 West Main
Kalamazoo, MI 49009

Created By

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Rugger’s Up and Under Golf Outing “The Madagascar Hack” is back!

Registration is at 11 am with a shotgun start at 12 Noon.
Four person teams and the entry is $60.00 per person. Steak dinner to follow at Up and Under on the Tiki patio. Raffle tickets will be sold at the course and the drawing will immediately follow dinner. Proceeds from the outing will go to benefit Families of Spinal Muscular Atrophy (FSMA) in honor of Brielle and Brooke!

Register early and good luck!

1st Annual Rusty Rudder Golf Tournament Helps Raise $4,000 for Families of SMA

Friends of Brielle and Brooke Kennedy and The Rusty Rudder Work to Raise Awareness about SMA

Skybrook Golf Course in Huntersville, North Carolina, hosted The Rusty Rudder’s 1st Charity golf tournament for Families of SMA.  It was a beautiful day that hosted over 140 golfers.

Brielle and Brooke Kennedy, who suffer from Spinal Muscular Atrophy (SMA) Type II, stole the hearts of many in the Charlotte, NC region. Both Eric Paul and Brian Johnston, of The Rusty Rudder Management Staff, knew they had to do something to help.  They both met the girls earlier in the year at a casino night fundraiser for the girls, hosted at Hendrick Motorsports, and they wanted to do everything they could to help find a cure to this devastating disease.  Eric and Brian rallied the community and vowed to raise monies and awareness for SMA. A golf tournament seemed the perfect fit and away they went to the drawing board, and on September 13th, they held their first ever charity golf tournament.

“We knew we had a lot to do in a short period of time, but we’d do anything we could to help these two sweet little angels”, said Eric Paul, Owner of The Rusty Rudder.  The ladies and gentlemen that participated teed off to a shotgun start, captain’s choice format and finished up around 4:00pm.  After golf a reception was held back at The Rusty Rudder with complimentary food, cocktails, friends and family.  “We couldn’t have asked for a better turnout the first time and we can’t wait to start planning again for next year”, said Brian Johnston, General Manager of The Rusty Rudder.  Kristin Balzer’s team won the tournament and bragging rights for next year.  “The Rusty Rudder is a great place to work and my father and his team were thrilled to participate and can’t wait to defend the winning title until next year”, said Kristin Balzer, bartender at The Rusty Rudder.  If you are ever in the Cornelius area of Lake Norman, NC, home to many superstars of NASCAR, please be sure to stop in at The Rusty Rudder and say hi to Eric and Brian!  Also, keep an eye on EBAY auctions under The Rusty Rudder for opportunities to bid on Used Raced NASCAR sheetmetal from Kasey Kahne, Richard Petty, AJ Allmendinger, Carl Edwards and many more.

Altogether, The Rusty Rudder Golf Tournament raised $4,000 for Families of SMA!

- Eric Paul of The Rusty Rudder & Christen Tinsley of HendrickMotorsports and Friends of Brielle and Brooke Kennedy

SMA BLOG PARTY: This is SMA

Brielle and Brooke, both have Spinal Muscular Atrophy, type II. SMA is a devastating disease and something I was not familiar with before Brielle’s diagnosis. Since that diagnosis, our lives have changed so much. So many hopes and dreams for our kids went out the window. We still have so much hope for research to find a treatment/cure for this cruel disease and we do our best to have a positive outlook on life and do as many fulfilling experiences for our girls as we can. Our friends and family have been with us every step of the way and we couldn’t have made it through those really tough times without them.

…and even our friends of friends want to help. The owners of the restaurant “Rusty Rudder” on Lake Norman in North Carolina are friends of my sister (aka Aunt Christen) and they held a golf tournament last Monday and want to give all the proceeds to Families of SMA in honor of Brielle and Brooke. They held a golf tournament at Skybrook golf course, then complimentary food and live music and a silent auction at the Rusty Rudder after. The music was awesome and they even let Brielle play the drums along with the guys playing the live music. It was a perfect night and a beautiful sunset. A night we will never forget and we can’t thank them enough for choosing SMA for the proceeds!

 

Skybrook Golf Course, North Carolina

It was warm!

It was warm!

Thank you Hendrick Motorsports for sponsoring a hole!

Thank you Hendrick Motorsports for sponsoring a hole!

Four Generations!  Sarah (mom), Brooke, Grandma Liz, Brielle, Aunt Christen, and Great-Grandma Gladys.

Four Generations!  Sarah (mom), Brooke, Grandma Liz, Brielle, Aunt Christen, and Great-Grandma Gladys.

B&B thought the golf cart was so fun!

B&B thought the golf cart was so fun!

Trying to get a “hole in one” to win 2 brand new jet skis. 

Trying to get a “hole in one” to win 2 brand new jet skis. 

Complimentary sponsorship by Friends of Brielle & Brooke.

Complimentary sponsorship by Friends of Brielle & Brooke.

Rusty Rudder last place award.  :)

Rusty Rudder last place award.  :)

Brielle playing the drums at the Rusty Rudder later that night.

Brielle playing the drums at the Rusty Rudder later that night.

Beautiful sunset over Lake Norman.  Our view off the deck of the Rusty Rudder.  A perfect way to end the night.

Beautiful sunset over Lake Norman.  Our view off the deck of the Rusty Rudder.  A perfect way to end the night.

What is SMA?

SMA kills more young children than any other inherited disease, is the most common cause of genetic infant mortality, is the #1 genetic killer of young children.

SMA is degenerative, causing the weakness and wasting of voluntary muscles — eventually impacting crawling, walking, standing, sitting up, coughing, breathing, swallowing, speaking…anything requiring muscle strength.

SMA is estimated to occur in 1 out of every 6,000 live births. Incidence rates are comparable to the more well known ALS/Lou Gehrig’s disease and Cystic Fibrosis.

1 in every 40 people unknowingly carries the SMA causing gene or nearly 8 Million potential parents in the U.S. alone — making it “common.” Both people must be carriers for the disease to be passed on — making it “rare.” There are simple blood or saliva tests available to learn if you are a carrier before you get pregnant. The American College of Medical Genetics recommends ALL couples be tested for SMA.

SMA is terminal. There is currently no treatment or cure… BUT there is much research work being done around the world and it holds enormous potential. In fact, the National Institutes of Health selected SMA as the disease closest to treatment.

Of course while we were in North Carolina, we had to stop in to see our favorite Crew Chief, Chad Knaus!

Of course while we were in North Carolina, we had to stop in to see our favorite Crew Chief, Chad Knaus!