Spinraza #7 dose is in and Brielle was sound asleep recovering and I noticed her legs moving like this! The medicine was instantly working!!
Lighting our Charlotte Candle Company candles designed by B&B tonight (we just got them today!) for the 💜Annual SMA awareness candlelighting 💜 for all of the SMA warriors and those who are now in Heaven. Brielle was diagnosed at 16 months old with SMA - the #1 genetic killer of children under the age of two and at that time, no treatment. Brooke was diagnosed shortly after birth because we found out it was genetic.
Next week they get another dose of the newly approved treatment, Spinraza, and we are so thankful for the halt it puts on the progression of the disease.
#smaawareness #smacandlelighting #icanandiwill #charlottecandlecompany
We are so excited to share this collaboration with our friends at Charlotte Candle Company! They asked if Brielle and Brooke would like to create their own candles for SMA Awareness Month! They are donating 100% of the proceeds too!! Brooke’s candle: “I Can And I... Will!” with a black coconut scent. (The mixture of coconut, star anise, cedarwood and island blossoms transforms your space in a tropical way. Subtle yet refreshing and soothing.) Brielle’s candle: “I wish we had s’more summer” with a toasted marshmallow scent. (smells like the yummy sweet smell of marshmallows roasting over a campfire!) They are being sold as a set for $15.
You can order from our website:
icanandiwill.com (shop tab)
Castings for new leg braces.
The State of Michigan Proclamation recognizing August as Spinal Muscular Atrophy awareness month!
#SMAawarenessmonth #icanandiwill #curesma
When turkeys fly...
One more night of fireworks!
Happy July 4th! 💕 Had a great night with our neighbors (and their new puppy!)
Two fishies getting better every time they swim.
💕 Happy Father’s Day! 💕
Have a great week at camp Anna and Brooke! 💕
Brooke got caught going over the speed limit. 🚔
Never been this close to a deer! 🦌 💕
Just completed the personal interview stage of the service dog application at CCI. If she is accepted, she will be on the waiting list - could be 1.5-2 year wait. ❤️🐶
✨Spinraza Update: B&B had a great follow-up appointment with their neurologist yesterday. Both girls are showing a little more strength and the good news is they have not shown any decline. ✨ ❤️🎉😁🙏