Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives. The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.
#ShowYourRare #MyRare #RareDiseaseDay #CureSMA #icanandiwill
Brielle’s last Father/Daughter dance and Brielle’s first. 💗
Annual sleep studies last night. Both girls slept pretty well with all the cords on them.
Brielle is able to get up from laying to sitting independently! Physical therapy goal MET! New goal will be to work on her speed doing it. What a blessing! #icanandiwill #spinraza #spinalmuscularatrophy
Brielle raised her arm as high as she could and the dolphin jumped up to touch it and Brielle stayed upright by herself the whole time! Amazing strength! #spinraza #icanandiwill
A so-mo video of a crab walk/jump off of the raft.
Night swimming was fun! We had the pool to ourselves.
These two love each other so much. 💗💗
Disney characters on the Fantasy 🚢. ❤️
Best Christmas/Birthday/New Years ever! 🌟
Magic Kingdom day! 🌟 Starting the year off at the happiest place on earth!
Had a fantastic birthday dinner at Palo. Looking forward to 2018!
Elf Squad 🧝♀️ 🧝♀️
Spinraza dose #5 is in the books! ✅✅ Everything went great. 🎉#milliondollarspine #spinraza #icanandiwill #spinalmuscularatrophy
Haven’t seen Brooke tall kneel like this in a long time!
#spinrazagains #goals #curesma #icanandiwill #spinraza
Happy Birthday Brooke! 🎉
Her hair caught more tickets in the ticket blaster than she caught in her hands. 😂