Fun nature field trip today with Brooke’s class. They measured trees and used a math formula to figure out how old the tree is. They also wrote Haiku poems about how nature sounds, smells and makes them feel. Brooke’s group found the largest tree and figured it to be over 200 years old. They named it Bob Norman. 😄
Another dose of Spinraza down! #6
Both girls are doing well.
Cuteness overload. B&B got hold and play with 5 kittens last night. 💕
Celebrating St Patrick’s Day with a Shamrock Shake. 🍀🍦🍀🍦
Home show fun at the expo center. 🏡
#rarediseaseday2018 #curesma #icanandiwill
So many Valentines! 💗
Valentine’s party loot! #candyoverload🍬🍭🍫
Happy Valentine’s Day!
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives. The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.
#ShowYourRare #MyRare #RareDiseaseDay #CureSMA #icanandiwill
Brielle’s last Father/Daughter dance and Brielle’s first. 💗
Annual sleep studies last night. Both girls slept pretty well with all the cords on them.
Brielle is able to get up from laying to sitting independently! Physical therapy goal MET! New goal will be to work on her speed doing it. What a blessing! #icanandiwill #spinraza #spinalmuscularatrophy
Brielle raised her arm as high as she could and the dolphin jumped up to touch it and Brielle stayed upright by herself the whole time! Amazing strength! #spinraza #icanandiwill
A so-mo video of a crab walk/jump off of the raft.
Night swimming was fun! We had the pool to ourselves.