It's 80's day at school today and Brielle is loving it! Standing with her KAFO braces on. 💪😍
#icanandiwill #curesma #80stothemax
Happy New Year! 🎉
Looking forward to all that 2017 has to offer!
Brooke just had her adenoids removed so that means popsicles for breakfast. Looking forward to a speedy recovery! 🙏
First ever treatment approved for SMA!!!!!!!!!!
What a Christmas gift!!!!!!!! We are in tears over here with excitement and hope. We don't know what the next steps will be to be able to get the treatment for Brielle and Brooke but first, we want to say a HUGE THANK YOU to all of YOU who have been there for us. Your support for SMA research has paid off!
#curesma #SPINRAZA #curesnow #icanandiwill #spinalmuscularatrophy
A favorite Christmas tradition. 🎄
Kisses for Ricky. 💋🐴❤️
#horselove #SMA #hippotherapy
Happy birthday Brooke! 🎂
The Niagara Falls are so beautiful at night!
Happy Halloween from Spectra Vondergeist and Jinafire Long (Monster High girls). 🎃👻
So impressed they could teeter totter together. Lots of work to balance and use their core strength. Brielle had to take her jacket off, she was working up a sweat.
So much FUN! 👍👍
The FDA has accepted the new drug application from Biogen, and has also granted it priority review. This means that the formal review process has now started for this first ever treatment for SMA!!
#cureSMA #SPINRAZA #nusinersen #icanandiwill
Pure joy riding on a swinging pirate ship!
Homecoming parade FUN! Ready to throw out some candy. Go Wildcats! 💛💙