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Mattawan family to present Congressman Upton with award for pediatric medical research act

KALAMAZOO, MI -- Congressman Fred Upton will be receiving an award in Washington Thursday from the National Organization for Rare Disorders (NORD).

Mattawan resident Sarah Kennedy and her daughters, Brooke, 5, and Brielle, 6, who were the subject of a Kalamazoo Gazette profile in 2012, will present the award to Upton. The two girls have a rare disease known as Type II spinal muscular atrophy.