H.R. 225: National Pediatric Research Network Act of 2013

Sadly, the National Pediatric Research Network Act (S.3461 / H.R. 6163) did not pass in the 112th Congress.

With that news, we are SO thankful to know that on January 14th, 2013 Congresswomen Lois Capps (CA) re-introduced the National Pediatric Research Network Act (H.R.225) in the United States House of Representatives.  This bipartisan legislation will create a national network focused on accelerating clinical trials for pediatric rare diseases, including SMA.

We are so hopeful it will pass in this 113th Congress!!

Track it with us!

GovTrack: http://www.govtrack.us/congress/bills/113/hr225/text

The Library of Congress: http://thomas.loc.gov/cgi-bin/bdquery/z?d113:HR00225:@@@X